Sjorgen Syndrom and Tarlov Cyst

Hi!

Super long time no see. today I wanna share something apart from my dress collection.

It is a rare disease which is I usually only read them on internet or books or on television. It’s a real thing in front of me. A real survivor as my new friend.
Kezia is her name.

Am not the expert on this issue but here is what I found from net. 

Due to http://www.mayoclinic.org Sjorgen Syndrome is : Sjogren’s (SHOW-grins) syndrome is a disorder of your immune system identified by its two most common symptoms — dry eyes and a dry mouth.
Sjogren’s syndrome often accompanies other immune system disorders, such as rheumatoid arthritis and lupus. In Sjogren’s syndrome, the mucous membranes and moisture-secreting glands of your eyes and mouth are usually affected first — resulting in decreased production of tears and saliva

And due to http://www.wikipedia.com Tarlov Cyst is : Tarlov cysts, also known as perineural cysts,[1] are type II innervated meningeal cysts, cerebrospinal-fluid-filled (CSF) sacs most frequently located in the spinal canal of the S1-to-S5 region of the spinal cord(much less often in the cervical, thoracic or lumbar spine), and can be distinguished from othermeningeal cysts by their nerve-fiber-filled walls. Tarlov cysts are defined as cysts formed within the nerve-root sheath at the dorsal root ganglion.[2] Since Tarlov cysts are cysts of the spinal meninges, symptomatic Tarlov cysts by definition cause myelopathy. The etiology of these cysts is not well understood; some current theories explaining this phenomenon have not yet been tested or challenged but include increased pressure in CSF, filling of congenital cysts with one-way valves, inflammation in response to trauma and disease. They are named for neurologist Isadore Tarlov, who described them in 1938.[3]
In my common mind, it is something rare which is when you eat something for normal people will gain strenght, for Sjorgen Syndrome will cause limp. For example rice. and for Tarlov Cyst is something who cause a woman couldn’t get pregnant.

Let’s stop it here cos it’s quite trembling me even when I write this. 

Kezia – one of survivor I met – gonna release her first book by Mid of this December 2016. This book meant to them who has similar syndrom and still struggle with it. 

As I know this is no cure. But it doesn’t mean you couldn’t live like normal people. For example Kezia. Yes there are so many abstinence for food but we still can hangout and have coffee time at cafe.

Not believe in me?

Check out this pictures.

This is us when we met at the first time. we were talked so long. Well.. actually it was her who share a lot and I was like OMG.. OMG.. and shocked when I know the truth.

This is us with other friends. Can you velieve for someone who has this kind of rare disease still able to laugh like that? Oh.. she even pose on camera. Can you believe that?!? 😂😂😂

Still not believe? She even ordered coffee sometimes when she feel quite fit. So still very normal, right for people like her?

So what I want to say is, keep strong like you before. I even ask you to be stronger. Cos you can. Tho it is easy to speak. But I can see the only way to keep our normal life is our own spirit. The spirit to live just like before.

At the end, for you who wants to asked more or want to know more about this you may go directly to her link :

Instagram : @keziayamamoto

Youtube : https://youtu.be/LHvUyWfVlx8 or https://youtu.be/Wze5dpvORwU

She love to share and courage people. If she can, why you can’t? 

Oya, also thanks to cute nice tote bag ya Kez. thank you for sharing and be my friend 😙😙😄😄

It’s super cute, right? 😄😄

That’s all my sharing.

Xoxo,

Yenny Lee

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2 thoughts on “Sjorgen Syndrom and Tarlov Cyst

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